Let there be light.

At last some good news! (I knew 2026 was gonna be our year) After 2 plus years of waiting - and after that mad appointment when they took loads of blood, gave me x-rays and tried to give me either the high Scrabble scoring Methotrexate or Adalimumab (both of which seem really long term treatments with a hellish list of side effects) as they'd forgotten I said I was there to see about light therapy, I've finally had a phototherapy appointment booked!

Not me next week (the hair is different).
 

 

So from next week I have to go to hospital, strip to my pants and stand in a giant microwave cum Star Trek transporter for ten minutes at a time twice a week for around 12 weeks.

It was meant to be three times a week but had to change it due to (still) having to take the girls to and from college whilst entertaining Cass.

Because there's still no support in place for them.

But if you're a regular reader you'll already know that. 

It's kinda scary that after all this time we're still waiting for support meaning that everything we do - whether it be planning shopping trips, doing laundry, attending meetings or yes even being ill - has to be planned around the kids.

As I said, I had to change the treatment because my first thought couldn't be 'brilliant! I'm no longer going to look like a man/dragon hybrid' or 'Finally a break from the absolute hell that the effect of having that all encompassing pesky Autistic body dysmorphia coupled with psoriasis is having on my general mental health and well being!' but 'How is this going to affect the girls attending college?'

 

Me next week.

 

I've just hit my mid-fifties (gah) and can honestly say that 20 plus years of no support or breaks (we've had 2 nights out as a couple in 7 years) is starting to show with a scary number of aches and pains and a general tiredness creeping in from nowhere.

Well I say nowhere but it's because I'm dead old innit?

Hopefully they'll be something (anything) in place by the time the girls are 30.

But look on the bright side - I should be less scabby by then! 

Fingers crossed!