Just a quick update - hot off the press, well phone - regarding the ongoing housing saga . Me, right now. It seems that because we were waiting to order new beds etc for the girls till the move and the fact that the house is full of bags/boxes (because we were meant to be moving, yes I keep mentioning this in the hope that someone from housing reads this...or can even read) we've now been reported to social work (again) and the housing association are insisting on yet another meeting about forcing (sorry 'persuading' us) into a temporary move (to the house we were meant to move to that Cassidy is now dead set against going to). A move that we've told them (multiple times) just isn't workable. Doing the work around us as much as possible with a week or so in an apartment/air B&B (which would be easier for Cassidy) isn't even being considered by them and any reasonable adjustments for disability (a legal requirement as far as I can tell) aren...
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Photolove.
A wee bit of a change from the (by now usual) housing woes and I thought I'd update everyone (anyone?) on the other major thing going down at the moment which was my exciting (to me at least) adventures in photo-therapy up at Gartnavel Hospital in 'sunny' Glasgow. My home from home the last few months. You see I've just finished my - 3 month - course so I reckoned it was time to review the whole hospital visit/treatment situation from an Autistic viewpoint. I've briefly covered the treatment in a few posts previously (but refrained from posting photos of my oh so lovely Psoriasis scabs) so this is less about the treatment and more about staffing and attitude. Oh and how they did putting up with me for 3 plus months. As regular readers will know it can be a wee bit hit and miss when it comes to medical matters - some folk, like the physiotherapist I had to see a few years back, have been utterly fantastic - she even incorporated my wrist/hand stims into my treat...
We Care A Lot.
It's been a fair few years since my dulcet tones graced your airwaves but it looks (sounds?) like I may be back on Radio Scotland in the next month - but not alas playing a mix of obscure Eurohorror tracks (tho' that might happen if enough folk ask for it). The BBC are holding a Caring Matters Week with a variety of programmes and interviews which may, in fact, feature me ranting excitingly - and angrily - about various issues around and affecting carers. Including housing support no doubt. First up is the recording of the Caring Matters live roadshow next week - now what to wear for radio? - with (hopefully) a few interviews to follow. Updates to follow.
Rules and Regulations.
Well reckoned it was about time for a house update as I'm sure everyone is chomping at the bit to read the next exciting (nay maddening) installment. Since last time we actually heard back re: my complaint but just not within the 2 working days promised on the website as it took 5 in total (not counting the weekend obviously cos I'm kind). And the reason for the delay? It appears that no-one bothered to check their junk mail folder. Yes I know. To be fair we did get a phone call (which Rho took as I was out getting the girls) followed by a - requested - hard copy which is as non-committal and 'we better not admit to anything in case they sue' as you can get. Examples of this include: When we pointed out that this entire (6 year) situation has been caused in part by the frightening turnover in housing officer staff with a lack of continuity/follow up paper work left we were told bluntly that any complaint over 6 months old is invalid. Which was nice. When we express...
Delia Derbyshire: Audiological.
Celebrating the utterly Autistic (I'm claiming her, deal with it) genius of Delia Derbyshire, the high priestess of British electronic music on her birthday. Nuff said.
May The Fourth Be With You!
Celebrate Star Wars Day with this Sith-tastic mix of Skywalker inspired sounds remixed for your dancing pleasure. Caution: may contain Gungans.
